Acerca de este Curso
3.8
9 calificaciones
3 revisiones

100 % en línea

Comienza de inmediato y aprende a tu propio ritmo.

Fechas límite flexibles

Restablece las fechas límite en función de tus horarios.

Nivel principiante

Aprox. 11 horas para completar

Sugerido: 5 weeks of study, 2-3 hours/ week...

Inglés (English)

Subtítulos: Inglés (English)

100 % en línea

Comienza de inmediato y aprende a tu propio ritmo.

Fechas límite flexibles

Restablece las fechas límite en función de tus horarios.

Nivel principiante

Aprox. 11 horas para completar

Sugerido: 5 weeks of study, 2-3 hours/ week...

Inglés (English)

Subtítulos: Inglés (English)

Programa - Qué aprenderás en este curso

Semana
1
3 horas para completar

What is on Your Mind?

In this module, we will introduce the subject of genetic privacy. In a time in which more and more genetic material and information is being stored in biobanks, research labs and private companies, the urgency to consider the concept of ‘genetic privacy’ becomes all the more pronounced. We will discuss different practices dedicated to the disclosure and application of genetic data, and we ask you to reflect on your initial stance towards these practices. ...
3 videos (Total 12 minutos), 9 readings, 1 quiz
3 videos
Course Introduction3m
Genetic data: Practices of disclosure7m
9 lecturas
Course Overview10m
Meet the instructors & the team5m
Welcome to Leiden University5m
Community Guidelines & Academic Toolkit10m
Complete our short survey10m
Sources and video material30m
How do you extract DNA?5m
Download your Learning journal3m
Learning journal - Step 120m
1 ejercicio de práctica
What do you think about genetic privacy?30m
Semana
2
2 horas para completar

Open up Your Mind

This part of the course will stimulate you to reflect critically on the different types of practices that work with genetic data, among which the Personal Genome Project initiated by George Church. You will get familiar with the ethical questions that these practices could raise. Furthermore, you will be encouraged to think about what the concept of genetic privacy means to you personally. What actually is genetic privacy? And what are the borders of its definition? How can we define the border between individual autonomy and public interest? Where do you place this border yourself? ...
2 videos (Total 7 minutos), 3 readings
2 videos
What is genetic privacy?5m
3 lecturas
Interview with George Church10m
Sources and video material30m
Learning journal - Step 230m
Semana
3
3 horas para completar

Connect your mind

This week we will enrich the ethical debate around genetic privacy by viewing the subject from the perspective of art and culture. We will see how artworks and cultural objects can foreground the ambiguities, emotions and (cultural) assumptions often neglected in mainstream debates around biotechnological developments. Moreover, we will explore the potential of art to allow new publics to arise in the discourse around genetic research. In this module, we would like to make you aware of how your own emotions and expectations might influence your stance on the subject. From there on, you can get to a more nuanced point of view towards the issue of genetic privacy....
4 videos (Total 12 minutos), 4 readings
4 videos
How can art enrich the debate around genetic privacy?5m
Art as a space for disruption - Intro36s
Art as a space for disruption5m
4 lecturas
Sources and video material30m
Interview with bioartist Adam Zaretsky4m
Sources and video material30m
Learning journal - Step 330m
Semana
4
4 horas para completar

Make up your mind

Different groups of people with sometimes opposing interests take part in the public debate around the disclosure and application of genetic data. For example, patients, consumers, researchers, corporations, or politicians. These groups, or stakeholders, bring forward diverse arguments to advocate their position. Their arguments are often formed by emotions, gut feelings and cultural values. In order to regulate the disclosure of genetic data, while taking into consideration the notion of genetic privacy, we have to identify the different stakeholders and their values present in this debate. ...
5 videos (Total 16 minutos), 2 readings, 2 quizzes
5 videos
Podcast CEO of Hartwig Medical Foundation4m
Podcast Patient3m
Podcast Mother of three3m
Podcast Professor of digital cultures4m
2 lecturas
Source and video material30m
Learning journal - Step 4s
1 ejercicio de práctica
Let's recap!30m
3.8
3 revisionesChevron Right

Principales revisiones

por RHMay 22nd 2018

Great information on a topic that I have never really given much attention to. Great instructor and the course is well laid out. Strongly recommended.

Instructores

Avatar

Lotte Pet

Art historian and artist
Faculty of Humanities, Leiden University
Avatar

Robert Zwijnenberg

Professor of Art and Science Interactions
Faculty of Humanities, Leiden University

Acerca de Universiteit Leiden

Leiden University is one of Europe's foremost research universities. This prominent position gives our graduates a leading edge in applying for academic posts and for functions outside academia. Leiden University is the oldest university in the Netherlands. It was founded in February 1575, as a gift from William of Orange to the citizens of Leiden after they had withstood a long siege by the Spanish. Our motto is: Praesidium Libertatis — Bastion of Liberty....

Preguntas Frecuentes

  • Una vez que te inscribes para obtener un Certificado, tendrás acceso a todos los videos, cuestionarios y tareas de programación (si corresponde). Las tareas calificadas por compañeros solo pueden enviarse y revisarse una vez que haya comenzado tu sesión. Si eliges explorar el curso sin comprarlo, es posible que no puedas acceder a determinadas tareas.

  • Cuando compras un Certificado, obtienes acceso a todos los materiales del curso, incluidas las tareas calificadas. Una vez que completes el curso, se añadirá tu Certificado electrónico a la página Logros. Desde allí, puedes imprimir tu Certificado o añadirlo a tu perfil de LinkedIn. Si solo quieres leer y visualizar el contenido del curso, puedes participar del curso como oyente sin costo.

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